Just got back from the Drs visit at the U of Chicago.
Well, first i have to get a Petscan??? for cancer.....for that spot....they don't think so but want to check it out.....say if it is cancer which they doubt ,,,,they just cut it out.
They keep saying they would like to have a biopsy for Pulmonary Fibrosis but my heart is so weak the procedure might kill me.
So if the Petscan says something they will do surgery
Also, he doesn't think that med in Germany does any good from experience with it.
When i walk my oxygen level goes way too far down and could cause my heart to go kaput....so he wants me to take oxygen when i do anything physical....walking, bike riding...airplanes..
etc...Of course I said yes, and because the level is so low,,,the gov will pay for it.
So much more information. Dr and asst....talked to us for 45 minutes with the xrays--cat scan results on their monitor...pointing out slice by slice all the things wrong with my Lungs.. .holes,, honeycone?, ,,scaring and scaring all over.
He said the lung dr up here did a great report but that the equipment U of Chicago is so much more powerful and thus more details....than Ressurections.
He compared the photos and you could see clearly the new photos.
Jill went with us and drove ...an hour in slow traffic....we had breakfast there for 3 of us and it was only $12. 3 coffee's...scrambled eggs,,,hash browns and toast
Dr was happy/friendly and encouraged me to go to Fla.
In may he scheduled the lung tests again to see if any change...if so ...maybe biopsy
I'm sure i will remember more later....I will let you know.
Monday, October 31, 2011
Sunday, October 30, 2011
Pre Halloween....fright...
Hi Everyone,
Its Sunday evening and i'm about to jump in the sack. I don't know how much or how soon I'll get to sleep.
Seems like what I thought was a deep chest cold or some other chest problem.
Well, it might be something called Pulmonary Fibrosis.
After a pneumonia attack a couple years back Dr. Warner said I had some scar tissue. It might be the kind that stays the same or some that I don't want. The kind that spreads across the lungs. It turns them into cement...my word....into a sort of fiberous that doesn't do any work like moving the oxygen around.
So, I had another Dr check me out and he told me I had Pulmonary Fibrosis....and I should just go to Fla and relax.
I asked if it was going to kill me like it killed my brother.
He laughed and said Hell No, your heart will kill you first....Don't you know you have a very weak heart?
Well, that wasn't a good answer for me or my family. I searched the web and my daughter Jessie had a couple dr friends who suggested a PF specialist at the U of Chicago. They would try to get me a rush on the appointment date.
Dr Imre Noth office called and said that I should come in early Oct for tests and return on Halloween for a interview with the Dr.
At that time he would tell me if there is a treatment for my PF. There is no cure but there might be a treatment. The treatment might stop the progress of PF. Which I certainly would be happy with.
I won't guess what other options might be there or lack of them.
I'll write soon about what the dr says.....but soon thereafter, I will leave for Fla.
talk later
jim
Its Sunday evening and i'm about to jump in the sack. I don't know how much or how soon I'll get to sleep.
Seems like what I thought was a deep chest cold or some other chest problem.
Well, it might be something called Pulmonary Fibrosis.
After a pneumonia attack a couple years back Dr. Warner said I had some scar tissue. It might be the kind that stays the same or some that I don't want. The kind that spreads across the lungs. It turns them into cement...my word....into a sort of fiberous that doesn't do any work like moving the oxygen around.
So, I had another Dr check me out and he told me I had Pulmonary Fibrosis....and I should just go to Fla and relax.
I asked if it was going to kill me like it killed my brother.
He laughed and said Hell No, your heart will kill you first....Don't you know you have a very weak heart?
Well, that wasn't a good answer for me or my family. I searched the web and my daughter Jessie had a couple dr friends who suggested a PF specialist at the U of Chicago. They would try to get me a rush on the appointment date.
Dr Imre Noth office called and said that I should come in early Oct for tests and return on Halloween for a interview with the Dr.
At that time he would tell me if there is a treatment for my PF. There is no cure but there might be a treatment. The treatment might stop the progress of PF. Which I certainly would be happy with.
I won't guess what other options might be there or lack of them.
I'll write soon about what the dr says.....but soon thereafter, I will leave for Fla.
talk later
jim
Subscribe to:
Posts (Atom)