After coffee at Panera this morning, we tried to get some oxygen.
The Air people told us that they needed the test results within 48 hrs of testing to get the Oxygen from Medicare. Its been a week or so since the test so now we have to take another test somewhere. You would think someone might have mentioned it to us.
Karolyn was upset. Everything we do, it seems we have to take a step backwards. And she's nervous that soon i will be complaining that its too cold up North and I'll start whining: I WANNA GO TO FLA.
Too much pressure all together and she showed it for a few moments this afternoon.
Its not nice to see her crying and I realized that she has been told that Jim has a really bad heart and something on the lungs besides the Pulmonary Fibrosis. Things don't look good for us spending our Golden Years together.
A little hug just doesn't do it for her. But she is strong and we've been thru similiar stuff for a couple decades now.
Like Roseanne Ann Adana said: If its not one thing its another.
Wednesday, November 2, 2011
Tuesday, November 1, 2011
First day at coffee...since the dr
Tues:
The morning was interesting.
Went out to Mcds for coffee and talk. And met my coffee friends.
I was late as I slept in but they were still there at 8:30am.
The first words out of their mouth of course.....You're Late....
Next was Well, what did the dr tell you.
I told them I was confused and didn't know exactly what was going on with my lungs. I didn't talk loud and tried to just keep the attitude of all our breakfast conversations. Light and fun and a little descriptive.
Explained a little of what was going on and of course got some looks but then we talked about the usual stuff.
Pat, discussed Greece and the problems with them.
Phil, was talking about his personal problems.
Mr. Lee was talking but no one could understand. Finally, I understood....Jimmy..what you go were and now i leave...
But with his smile we all laughed.
After coffee and a $1 burrito I went home. Talked to K who insisted we do all the things the dr told us to. Oxygen, Petscan and meds.
Did it all and returned candy to Walmart and shopped at Costco. Its so interesting sitting by the eating areas and watching the people walk by. All so different...You never know what you will see.
But first WEDS we go for coffee and again a few questions from all my Panera coffee friends.
I don't mind talking about the lungs. Its good, but I think about them too much.
So thurs morning at 7:15 I'll be taking the test for 2 hrs.
The morning was interesting.
Went out to Mcds for coffee and talk. And met my coffee friends.
I was late as I slept in but they were still there at 8:30am.
The first words out of their mouth of course.....You're Late....
Next was Well, what did the dr tell you.
I told them I was confused and didn't know exactly what was going on with my lungs. I didn't talk loud and tried to just keep the attitude of all our breakfast conversations. Light and fun and a little descriptive.
Explained a little of what was going on and of course got some looks but then we talked about the usual stuff.
Pat, discussed Greece and the problems with them.
Phil, was talking about his personal problems.
Mr. Lee was talking but no one could understand. Finally, I understood....Jimmy..what you go were and now i leave...
But with his smile we all laughed.
After coffee and a $1 burrito I went home. Talked to K who insisted we do all the things the dr told us to. Oxygen, Petscan and meds.
Did it all and returned candy to Walmart and shopped at Costco. Its so interesting sitting by the eating areas and watching the people walk by. All so different...You never know what you will see.
But first WEDS we go for coffee and again a few questions from all my Panera coffee friends.
I don't mind talking about the lungs. Its good, but I think about them too much.
So thurs morning at 7:15 I'll be taking the test for 2 hrs.
Monday, October 31, 2011
Halloween Doctors Visit
Just got back from the Drs visit at the U of Chicago.
Well, first i have to get a Petscan??? for cancer.....for that spot....they don't think so but want to check it out.....say if it is cancer which they doubt ,,,,they just cut it out.
They keep saying they would like to have a biopsy for Pulmonary Fibrosis but my heart is so weak the procedure might kill me.
So if the Petscan says something they will do surgery
Also, he doesn't think that med in Germany does any good from experience with it.
When i walk my oxygen level goes way too far down and could cause my heart to go kaput....so he wants me to take oxygen when i do anything physical....walking, bike riding...airplanes..
etc...Of course I said yes, and because the level is so low,,,the gov will pay for it.
So much more information. Dr and asst....talked to us for 45 minutes with the xrays--cat scan results on their monitor...pointing out slice by slice all the things wrong with my Lungs.. .holes,, honeycone?, ,,scaring and scaring all over.
He said the lung dr up here did a great report but that the equipment U of Chicago is so much more powerful and thus more details....than Ressurections.
He compared the photos and you could see clearly the new photos.
Jill went with us and drove ...an hour in slow traffic....we had breakfast there for 3 of us and it was only $12. 3 coffee's...scrambled eggs,,,hash browns and toast
Dr was happy/friendly and encouraged me to go to Fla.
In may he scheduled the lung tests again to see if any change...if so ...maybe biopsy
I'm sure i will remember more later....I will let you know.
Well, first i have to get a Petscan??? for cancer.....for that spot....they don't think so but want to check it out.....say if it is cancer which they doubt ,,,,they just cut it out.
They keep saying they would like to have a biopsy for Pulmonary Fibrosis but my heart is so weak the procedure might kill me.
So if the Petscan says something they will do surgery
Also, he doesn't think that med in Germany does any good from experience with it.
When i walk my oxygen level goes way too far down and could cause my heart to go kaput....so he wants me to take oxygen when i do anything physical....walking, bike riding...airplanes..
etc...Of course I said yes, and because the level is so low,,,the gov will pay for it.
So much more information. Dr and asst....talked to us for 45 minutes with the xrays--cat scan results on their monitor...pointing out slice by slice all the things wrong with my Lungs.. .holes,, honeycone?, ,,scaring and scaring all over.
He said the lung dr up here did a great report but that the equipment U of Chicago is so much more powerful and thus more details....than Ressurections.
He compared the photos and you could see clearly the new photos.
Jill went with us and drove ...an hour in slow traffic....we had breakfast there for 3 of us and it was only $12. 3 coffee's...scrambled eggs,,,hash browns and toast
Dr was happy/friendly and encouraged me to go to Fla.
In may he scheduled the lung tests again to see if any change...if so ...maybe biopsy
I'm sure i will remember more later....I will let you know.
Sunday, October 30, 2011
Pre Halloween....fright...
Hi Everyone,
Its Sunday evening and i'm about to jump in the sack. I don't know how much or how soon I'll get to sleep.
Seems like what I thought was a deep chest cold or some other chest problem.
Well, it might be something called Pulmonary Fibrosis.
After a pneumonia attack a couple years back Dr. Warner said I had some scar tissue. It might be the kind that stays the same or some that I don't want. The kind that spreads across the lungs. It turns them into cement...my word....into a sort of fiberous that doesn't do any work like moving the oxygen around.
So, I had another Dr check me out and he told me I had Pulmonary Fibrosis....and I should just go to Fla and relax.
I asked if it was going to kill me like it killed my brother.
He laughed and said Hell No, your heart will kill you first....Don't you know you have a very weak heart?
Well, that wasn't a good answer for me or my family. I searched the web and my daughter Jessie had a couple dr friends who suggested a PF specialist at the U of Chicago. They would try to get me a rush on the appointment date.
Dr Imre Noth office called and said that I should come in early Oct for tests and return on Halloween for a interview with the Dr.
At that time he would tell me if there is a treatment for my PF. There is no cure but there might be a treatment. The treatment might stop the progress of PF. Which I certainly would be happy with.
I won't guess what other options might be there or lack of them.
I'll write soon about what the dr says.....but soon thereafter, I will leave for Fla.
talk later
jim
Its Sunday evening and i'm about to jump in the sack. I don't know how much or how soon I'll get to sleep.
Seems like what I thought was a deep chest cold or some other chest problem.
Well, it might be something called Pulmonary Fibrosis.
After a pneumonia attack a couple years back Dr. Warner said I had some scar tissue. It might be the kind that stays the same or some that I don't want. The kind that spreads across the lungs. It turns them into cement...my word....into a sort of fiberous that doesn't do any work like moving the oxygen around.
So, I had another Dr check me out and he told me I had Pulmonary Fibrosis....and I should just go to Fla and relax.
I asked if it was going to kill me like it killed my brother.
He laughed and said Hell No, your heart will kill you first....Don't you know you have a very weak heart?
Well, that wasn't a good answer for me or my family. I searched the web and my daughter Jessie had a couple dr friends who suggested a PF specialist at the U of Chicago. They would try to get me a rush on the appointment date.
Dr Imre Noth office called and said that I should come in early Oct for tests and return on Halloween for a interview with the Dr.
At that time he would tell me if there is a treatment for my PF. There is no cure but there might be a treatment. The treatment might stop the progress of PF. Which I certainly would be happy with.
I won't guess what other options might be there or lack of them.
I'll write soon about what the dr says.....but soon thereafter, I will leave for Fla.
talk later
jim
Wednesday, September 28, 2011
Aunt Adeline's
During the past week we went to Aunt Adeline's funeral mass/buriel and luncheon. Here are a few photos.
Monday, September 26, 2011
Trouble at Panera
WELL!!! Every Monday I go to a large group of Senior ladies in Panera. About 12 sit around a table and I try to sneak up to them. Then, I jump out and say LOUDLY,
HELLO EVERYBODY and then just a minute of small loud conversation with a lot of laughs.
Today at the next table was a group having a business meeting. One approached me and said their meeting was being interupted by me talking loud and I should be quiet.
I am never rude, but told her in a rising voice that I do this routine every Monday for 2 minutes and for the rest of my Life every Monday I will do the same thing. Now leave us alone.
I was so mad i walked away from the lady friends who all had their mouths dropped open. I felt so sorry for them but I was upset.
When I was leaving Panera, My ladies all screamed at me GOODBYE JIM, SEE YOU NEXT WEEK, with the biggest smiles on their faces aughing and giggling the entire time.
I never heard them all raise their voices before. They were not going to let some younger woman shut down their fun.
Maybe she learned a lesson, leave the seniors alone,
I guess you can still have fun when you get old.
Thank you ladies----you certainly made my day. Photo of my ladies included.
Thursday, September 15, 2011
smoke and golf
Hi Everyone,
Well, smoke is getting into my eyes today.
There were brownish clouds way up high yesterday and today.
And the smell of someones house burning in the neighborhood.
Turns out its just a big forest fire in Minn that the smoke is drifting all the way to Chicago and beyond.
People with the usual health problems have been warned to stay inside.
So, I'm inside with all the dust and cat hair.......much heathier I'm sure.
Have a good day......and maybe I'll tell you about my 50 foot putt.
Oh heck,,,,i'll do that now
Yesterday I played golf with my son in law Mark at a very easy 9 hole golf course. I moved up from a par 3 for the day.
There are no sand traps and just a few bunkers with wide wide fairways.
One hole was a par 3....my kind of golf. 149 yards with a big big Oval Green.
I used a 8 iron and hit it high but way to the right of the green.
The hole was way on the left of the green about 50 feet away.
But something was different. I could easily see the path the ball should take to be close to the cup.
The other golfers in my 4 some....hit their ballsoff the green and them chipped them back up onto the green.
Mark was about 20 feet above the hole and just hit a really nice putt downhill toward
the hole stopping about a foot away.
It was my turn and everyone was saying Come on Jim, hit it close.
I had no intentions of hitting it close.....I only thought No Big Deal to put it in the hole.
I practiced a few swings and then stepped up and had the smoothest stroke hitting the ball just solid in the middle of the putter.
The ball didn't jump off the putter but started to roll with a decent speed.
It took forever but started out going up hill above the hole for about 6 inches and then curved back down toward the hole and almost stopped.
But it had one more roll and that was just enough to put it in the hole.
Tom, Lucas and Mark all jumped in the air screaming as if I did something impossible.
Me, it was meant to be and expected. A 50 foot perfect putt.
Thats my golf story and i'm sticking to it.
jim--Oh did I tell you, I beat Mark by one stroke 43--44.....I must be like wine...getting better with age.
Well, smoke is getting into my eyes today.
There were brownish clouds way up high yesterday and today.
And the smell of someones house burning in the neighborhood.
Turns out its just a big forest fire in Minn that the smoke is drifting all the way to Chicago and beyond.
People with the usual health problems have been warned to stay inside.
So, I'm inside with all the dust and cat hair.......much heathier I'm sure.
Have a good day......and maybe I'll tell you about my 50 foot putt.
Oh heck,,,,i'll do that now
Yesterday I played golf with my son in law Mark at a very easy 9 hole golf course. I moved up from a par 3 for the day.
There are no sand traps and just a few bunkers with wide wide fairways.
One hole was a par 3....my kind of golf. 149 yards with a big big Oval Green.
I used a 8 iron and hit it high but way to the right of the green.
The hole was way on the left of the green about 50 feet away.
But something was different. I could easily see the path the ball should take to be close to the cup.
The other golfers in my 4 some....hit their ballsoff the green and them chipped them back up onto the green.
Mark was about 20 feet above the hole and just hit a really nice putt downhill toward
the hole stopping about a foot away.
It was my turn and everyone was saying Come on Jim, hit it close.
I had no intentions of hitting it close.....I only thought No Big Deal to put it in the hole.
I practiced a few swings and then stepped up and had the smoothest stroke hitting the ball just solid in the middle of the putter.
The ball didn't jump off the putter but started to roll with a decent speed.
It took forever but started out going up hill above the hole for about 6 inches and then curved back down toward the hole and almost stopped.
But it had one more roll and that was just enough to put it in the hole.
Tom, Lucas and Mark all jumped in the air screaming as if I did something impossible.
Me, it was meant to be and expected. A 50 foot perfect putt.
Thats my golf story and i'm sticking to it.
jim--Oh did I tell you, I beat Mark by one stroke 43--44.....I must be like wine...getting better with age.
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